I'm not even really sure how to say it other than Juliet, once again, is fighting for her life. Over the last 48 hours, her kidneys have significantly slowed in output, her weight is climbing again, the fluid around her lungs has significantly increased, and her heart is starting to pay the price for all of the above. The optimism in her prognosis is swiftly changing.
Again today, we met with nephrology, GI, infectious disease, and neonatology teams - trying to reformulate a plan. They are trying some new medicines and new techniques in hopes of turning this around. Another day was spent by Chris and I holding Juliet's hand and telling her how many people love her and want to see her pull through - including her big sisters. The emotional roller coaster of the last few weeks is really taking its toll. But thank goodness, we have Addison and Mackenzie to bring a little joy to our days with their never-ending dance parties and giggles.
I'm asking all of you to keep our family and especially Juliet in your thoughts and prayers. At this point we are taking things one day at a time - even one hour at a time. As her doctor said this morning, "Juliet rallied once before and now she needs to do it again."
Thinking of you and praying for Juliet.
ReplyDeleteWe'll be praying for Juliet and thinking of you all at this difficult time. Don't give up hope. She needs your strength and encouragement more now than ever. I know this has been hard on you both and am praying for your strength as well. I pray that Juliets lungs, heart and kidneys will be given the strength they need to pull through this. I believe in miracles and so should you. As hard as it is to understand why God is putting Juliet through this, I trust in him. Love you all.....Aunt Laurie
ReplyDeletePraying that Juliet will stabilize very soon and you can hold her again:) I know the Lord is holding you and He is faithful! Love, Betty
ReplyDeleteOur prayers are with baby Juliet. You are such wonderful parents. With love, Jo-Anne and Steve
ReplyDeleteOur hearts and prayers are with Juliet today. Much love,
ReplyDeleteLaura and Rob
Praying and thinking of you all. I pray Juliet gets stronger by the minute.
ReplyDeleteMy heart is with you. I am thinking of you and Juliet and will keep you especially close while she fights to get back on track. We will be praying for you. Let me know if you need anything!
ReplyDeleteJess and Chris, E.J. and I send our love and good thoughts for Juliet. I am hopeful that in the nearly 24 hours since your post, her situation has improved greatly. I really can't imagine anything worse than having a child in crisis and I admire your strength throughout what must the scariest, most helpless feeling months of both of your lives. I know how much you both love your daughter and how much Addison and Mackenzie love their little sister. You are doing everything you can for her. Much, much love and big hugs.
ReplyDeleteJessica - I am heartbroken to hear that Juliet is struggling again. You and that sweet baby are in my thoughts and prayers. Stay strong.
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