Thursday, January 6, 2011

A New Home

Juliet now resides in the PICU. She has her own room which I have already "decorated". She has her own TV which frequently is turned to the "meditation channel" that plays constant spa music. It is very relaxing - at times. Although, I think she is still getting used to the new scenery. So am I.

Change is always hard, but I am hoping this change is what Jules needs to get home. We will miss the NICU dearly, as they treated Juliet like she was their own child and got her to where she is today. Every one of the NICU employees will hold a special place in our hearts as we continue this journey.

Here is her new room. I need to send a "shout out" to the 6th graders at St. Theresa School who follow this blog and made a special angel chain for Juliet's bedside. (It's hanging on the door in the picture above.) Thank you so much for her angels and for keeping Juliet Grace in your prayers.

Today's big change was feeding. They started to feed Jules through her second stoma. This will give the lower section of her intestines a chance to work. This will also help her to finally absorb some good nutrients. For now, they are only feeding her this way - not into her stomach. They are starting this feeding even slower than before and will increase the amount/ speed as she tolerates. If it goes well they will feed her both ways to maximize absorption. The thought is if we can finally get her some good nutrition she will be better able to heal. Gaining "good" weight is one of the biggest goals right now as she hasn't really gained any actual weight since October.


  1. Hoping the change will show quick improvements for Juliet. Now she can have her own private parties! Glad to hear she is getting some REAL food and nutrition. And thanks for the pics. She looks good. Keep it up Juliet! We love you. 2011 will be a better year for you!
    Hugs and kisses.....aunt laurie

  2. I am glad to hear that she is making progress again. What a beautiful photo! I love her big, gorgeous eyes! You all remain in our thoughts and prayers. - Tara Burkholder Saunders

  3. Love those georgeous big brown eyes...Hugs and prayers will continue with you through this journey to bring Juliet home...God Bless...Becky Hinkle

  4. Naomi (Beckwith) KraenbringJanuary 9, 2011 at 2:48 PM

    Checking in on you guys frequently ... praying that the cycle will break and Juliet will experience positive growth and healing!!