Sunday, December 5, 2010

The good news and the not-so-good news

First, the good news: I held Juliet today!! Thanks Jess! (one of Jules' primary nurses who was up for the challenge of moving ALL of her attachments)

I loved snuggling with her, even though she didn't really feel so good. That leads me to the not-so-good news. A mid-afternoon chest xray revealed a large amount of air on her lungs. After repositioning her chest tube, she seemed to feel a little better...but not for long. She had a few episodes of dropping her heart rate and oxygen saturation levels. Her doctor wanted to do a more involved adjustment of one of her chest tubes. This required a lot of pain meds and sedation. Since, Jules' was already having a little difficulty today, they decided to put her BACK on the ventilator to adjust the chest tube. The plan is to leave her on the vent through tomorrow and then hopefully take her off again. She definitely wasn't very perky today.


  1. Beautiful photo of you and Juliet. She is such an amazingly strong little person. Takes after her parents.

  2. God Bless you all. I will continue to keep you all in my prayers. The picture of you both is priceless and Juliet you keep up the fight...there are alot of folks out here pulling for you and your family... Becky Hinkle

  3. I'm soaking in this beautiful photo - to see her held in her mommies arms - perfect. I keep praying and thinking of you all...