She has had a few good days - but don't tell her that. She has started getting breastmilk again - although the doctors/nurses are making it "skim" to help prevent exacerbation of her chylothorax. In the next day or two, she will have a contrast study to look at the second section of her intestine. If it looks good, they will start feeding her through her other stoma (in addition to her stomach) so that ALL of her intestine will be digesting milk. This is in hopes of decreasing her TPN (IV nutrition) and improving the condition of her liver.
We are still dealing with the chest tube issue - as both chest tubes continue to drain a significant amount of fluid on a daily basis. Most doctors say this takes a LONG time to heal itself - hopefully soon they can be removed so she can be more active.
Let's hope Jules has another good week and continues in this direction with minimal hurdles. That would be the best Christmas present we could ask for.